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Fabric Not Fringe: Weaving Family Involvement throughout Training and Practice for Professionals and Advocates Working with Individuals with Disabilities and Special Health Care Needs
Cover of Fabric Not Fringe


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This white paper approaches family involvement from the
perspective of the family discipline itself, and the ongoing paradigm shift in
family-centered care—from fringe to fabric. We present readers with examples of
family involvement in LEND programs, from both the programmatic perspective and
that of trainees from diverse disciplines. We apply concepts from research
studies on family-centered care to understand the full potential of the family
discipline in developing substantial family involvement partnerships and
shaping family-directed systems of care for children with developmental
disabilities and special health care needs.